What is the Canadian Epilepsy Alliance?
The Canadian Epilepsy Alliance (CEA) is a Canada-wide network of grassroots organizations dedicated to the promotion of independence and quality of life for people with epilepsy and their families, through support services, information, advocacy, and public awareness.
As the voting member of the International Bureau of Epilepsy (IBE), the CEA is the voice for those living with epilepsy in Canada and internationally. The IBE is the international organisation that serves to develop, support and link national epilepsy organisations around the world and exists to improve the quality of life of all people with epilepsy and their families and carers. The Canadian Epilepsy Alliance works with the IBE and participates in global initiatives representing those living with epilepsy in Canada.
The CEA/ACE is a partnership between grassroots epilepsy organizations Canada-wide dedicated to the promotion of independence, quality of life, and full community participation of persons with and affected by epilepsy, through innovative support services, advocacy, education and public awareness.
Every person living with epilepsy has the opportunity to achieve his/her fullest potential and participate in and contribute to all aspects of life.
We value people’s right to live with dignity as full participants of their community.
We believe it is a person’s right to be informed and to participate meaningfully in their own health management.
We believe that health encompasses social and emotional well-being.
We believe society has an obligation to be accessible to all its members an opposing of all discrimination.
We respect confidentiality, self-determination, and choice.
We believe that strength is found in the ties that bind.
Mutual respect – where everyone is heard and listened to, differences are respected, and everyone’s opinion is valued.
Agreement by consensus.
Staff and volunteer partnership in decision making.
Loyalty to the organization and its members.
Primary dedication to the well-being of all Canadian living with epilepsy.
- The development of a central database of epilepsy programs and services coast-to-coast.
- Promote access to programs & services for individuals with epilepsy and their families throughout the nation.
- Promote publications distributed free of charge, Coast-to-Coast through the internet and social media forums
- Create co-ordinated public awareness and education campaigns
- Create Strategic partnership initiatives in marketing, fund development, and consumer advocacy.