My name is Deirdre Floyd, and I am President of the Canadian Epilepsy Alliance. My epilepsy was diagnosed over 40 years ago. I was thirteen years of age when I first started to have seizures. I eventually had a diagnosis of having an unusual anatomical cortical dysplasia, now known as subcortical band heterotopia (see Emslie JG et al. Canadian Journal of Neurological Science 2011; 38: 758–9). I am very familiar with some of the challenges individuals living with epilepsy face, on a daily basis, that go beyond just having seizures. So, over 27 years ago, I started volunteering with...Read More
August 29, 2018 Reed Hastings CEO, Netflix Netflix, Inc. 100 Winchester Circle Los Gatos, CA 95032, USA Dear Mr. Hastings, My name is Deirdre Floyd and I am President of the Canadian Epilepsy Alliance. We recently did a press release in relation to the Netflix Movie called “The After Party” in which the portrayal of a seizure was inaccurate and rather offensive. To quote a post from an individual that has epilepsy on our social media forum “Is this what they think of us? “ Individuals that have epilepsy often suffer from low self -esteem because they have been...Read More
August 28, 2018 Netflix recently released a movie called The After Party. Deirdre Floyd, President of The Canadian Epilepsy Alliance/Alliance Canadienne de l’epilepsie (CEA/ ACE) says “the portrayal of seizures in this film is inaccurate and portrays those living with seizures in a negative way”. Any depiction in a film that mocks a seizure disorder or makes it seem that all seizures look the same sets back the work the Canadian Epilepsy Alliance does to provide correction information in which there are many types of seizures. Our mission is to educate and provide correct information to the pubic about seizures that...Read More
As President of the Canadian Epilepsy Alliance , I want to introduce you to Lisa Pack from Newfoundland. In keeping with our agency’s 20th anniversary we wanted to highlight individual stories this year. Lisa reminds us that we can get through the tough times of getting diagnosed with epilepsy by having great support of family , friends, and determination. Epilepsy Newfoundland and Labrador offers a free membership with our agency, and Lisa Pack is a member living in St. John’s, Newfoundland. Members participate in ENL events, Purple Day, etc. I wasn’t born with epilepsy, and I didn’t develop it at a...Read More
For Immediate Release: June 20, 2018 Deirdre Floyd, President of the Canadian Epilepsy Alliance provides statement regarding Disney’s move to provide a warning for the animated movie “The Incredibles 2 “ June 19, 2018 Walt Disney Pictures issued a warning for the animated Movie “The Incredibles 2”. The Canadian Epilepsy Alliance/Alliance Canadienne de l’epilepsie (CEA/ ACE) believes this is a positive move for individuals that may have flashing lights as a trigger for their seizure disorder. “The CEA/ACE agrees with the Epilepsy Foundation of America that any steps to help provide warnings of imagery or flashing lights, that could...Read More
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