Author: Communications

My anxiety held me hostage in my bedroom

As President of the Canadian Epilepsy Alliance , I want to introduce you to Christine Jameison from British Columbia. Christine’s story is a great example of how living with epilepsy need not stand in the way of achievement ! I don’t remember when I had my first seizure- but I do remember the first one that truly altered my life. I was walking home from school early into my grade 10 year and all the sudden I couldn’t see. I couldn’t breathe, there was pain running up and down my entire body and everything seemed so loud. This was...

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ILAE 2017 — New Classification OF SEIZURE TYPES

The International League Against Epilepsy (ILAE) is a scientific organization devoted to improving the lives of those living with epilepsy by promoting research, education, and training. They have recently developed a new way of classifying seizures to help us better diagnose and treat epilepsy. The new system has new terms for seizures that didn’t fit in the old classification. Click below image for a printable PDF...

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Celebrating 20 years of support to people with epilepsy in Canada

My name is Deirdre Floyd, and I am President of the Canadian Epilepsy Alliance. My epilepsy was diagnosed over 40 years ago. I was thirteen years of age when I first started to have seizures. I eventually had a diagnosis of having an unusual anatomical cortical dysplasia, now known as subcortical band heterotopia (see Emslie JG et al. Canadian Journal of Neurological Science 2011; 38: 758–9). I am very familiar with some of the challenges individuals living with epilepsy face, on a daily basis, that go beyond just having seizures. So, over 27 years ago, I started volunteering with...

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Letter to Netflix

August 29, 2018 Reed Hastings CEO, Netflix Netflix, Inc. 100 Winchester Circle Los Gatos, CA 95032, USA Dear Mr. Hastings, My name is Deirdre Floyd and I am President of the Canadian Epilepsy Alliance. We recently did a press release in relation to the Netflix Movie called “The After Party” in which the portrayal of a seizure was inaccurate and rather offensive. To quote a post from an individual that has epilepsy on our social media forum “Is this what they think of us? “ Individuals that have epilepsy often suffer from low self -esteem because they have been...

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Statement on Netflix’s Film ‘The After Party’

August 28, 2018  Netflix recently released a movie called The After Party. Deirdre Floyd, President of The Canadian Epilepsy Alliance/Alliance Canadienne de l’epilepsie (CEA/ ACE) says  “the portrayal of seizures in this film is inaccurate and portrays those living with seizures in a negative way”. Any depiction in a film that mocks a seizure disorder or makes it seem that all seizures look the same sets back the work the Canadian Epilepsy Alliance does  to provide correction information in  which there are many types of seizures.  Our mission is to educate and provide correct information to the pubic about seizures that...

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Purple Day

Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide.

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