The Ontario Brain Institute’s (OBI) epilepsy research program (EpLink) is looking to better understand the questions Canadians have about epilepsy and seizures. These questions could be about causes or diagnosis, treatment, managing day-to-day life or managing co-existing conditions related to epilepsy. Co-existing conditions related to epilepsy include: Rett Syndrome Cerebral Palsy Down Syndrome Tuberous Sclerosis Depression, anxiety, or other mood disorders Neurodevelopmental disorders If you have epilepsy or experience seizures, or if you care for or work with someone who does, we want your help in setting the priorities for epilepsy research. Your answers to this survey will help...Read More
Everyone who has Epilepsy will have at least one seizure story that they can tell you changed their life in some way. Some people have had Epilepsy all their lives and yet their seizure story may have only occurred very recently, while other’s story happened decades ago. My life-changing seizure story may be a little different, as it was set in motion exactly six months before it actually occurred. When I was 40, I was working hard at my dream job; a job that I had worked my butt off to get with an incredible organization; Microsoft. I was...Read More
CANADIAN EPILEPSY ALLIANCE Statement on Ken Jeong’s Netflix Comedy Special Deirdre Floyd, President of Canadian Epilepsy Alliance: “I am somewhat mystified as to why forms of entertainment find it amusing to inaccurately portray first aid for seizures at all.” For Immediate Release – February 25, 2019 Once again the Canadian Epilepsy Alliance is responding to another example of inaccurate information in relation to first aid for seizures on Netflix’s Special called “Ken’s Jeong’s Comedy Special. This is so disappointing for the client base we serve in Canada that live with seizures disorders. As someone who has epilepsy,...Read More
As President of the Canadian Epilepsy Alliance , I want to introduce you to Christine Jameison from British Columbia. Christine’s story is a great example of how living with epilepsy need not stand in the way of achievement ! I don’t remember when I had my first seizure- but I do remember the first one that truly altered my life. I was walking home from school early into my grade 10 year and all the sudden I couldn’t see. I couldn’t breathe, there was pain running up and down my entire body and everything seemed so loud. This was...Read More
The International League Against Epilepsy (ILAE) is a scientific organization devoted to improving the lives of those living with epilepsy by promoting research, education, and training. They have recently developed a new way of classifying seizures to help us better diagnose and treat epilepsy. The new system has new terms for seizures that didn’t fit in the old classification. Click below image for a printable PDF...Read More
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Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide.