What is the Canadian Epilepsy Alliance?

We are a National members-based alliance of 26 community-based organizations working at the local level to offer support and education to 1 in 100 Canadians living with epilepsy and their families/caregivers.

Working collaboratively, we aspire to deliver inclusive, evidence-based programming and services integrated across geographic boundaries and to advocate at the local, Provincial-Territorial, and National levels on behalf of the community we serve.

Our advocacy work is strengthened by our members in both English and French-speaking Canada, in turn enhancing the work of the organizations to which the CEA is a member at the National (Canadian League Against Epilepsy, Neurological Health Charities Canada, and Best Medicines Coalition) and International (International Bureau for Epilepsy) levels.

Each of our member associations offers support and education to promote resiliency through skills/knowledge in epilepsy management, connection with others, and enables confidence in self-advocacy.

Mission

The CEA/ACE is a partnership of community-based epilepsy organizations serving 26 locations across Canada. Together, we are dedicated to promoting independence, quality of life, and full community participation for individuals living with and affected by epilepsy through innovative support services, advocacy, education, and public awareness.

Vision

Every person living with epilepsy has the opportunity to reach their full potential and to participate in and contribute to all aspects of life.

Values

  • We value every person’s right to live with dignity as a full participant in their community.

  • We believe individuals have the right to be informed and to participate meaningfully in managing their own health.

  • We recognize that health includes emotional and social well-being.

  • We believe society must be inclusive and accessible to all and reject all forms of discrimination.

  • We respect confidentiality, self-determination, and informed choice.

  • We believe in the power of community and collective support.

Operating Principles

  • Commitment to the well-being of all Canadians living with epilepsy

  • Open communication, collaboration, trust, and mutual respect

  • Commitment to accessibility for all, including in both official languages

Strategic Priorities

  • Promote national awareness of epilepsy through coordinated campaigns and support from local offices

  • Raise the profile of epilepsy through impactful public education and advocacy

  • Build strategic partnerships with clinical, research, and industry stakeholders at national and international levels to advance the interests of individuals living with epilepsy and their caregivers