In 2013, the Government of Canada passed a law identifying March 26 as the officially recognizing date for Epilepsy Awareness. Click For The Purple Day Act Over the years, we’ve seen landmarks around the world illuminated in purple lights for epilepsy awareness. Some Canadian landmarks that have participated are Niagara Falls, CN Tower, Signal Hill, SaskTel Centre, Halifax City Hall, the Peace Bridge, to name a few. Here are some tips if you would like to get a landmark in your community lit in purple: • Get involved with efforts in your community to light landmarks in your...Read More
We invite you to share your expectations and opinions regarding seizure detection systems in order to guide future developments in this area. Responses to this survey will then be analyzed and shared with the scientific community in order to center future developments in this field around the needs and preferences of people with epilepsy. If you are a person with epilepsy, click on this link to access the survey: https://forms.gle/QaeKnkKZH5PHqEiV8 If you are the caregiver of a person with epilepsy, click on this link to access the survey:...Read More
The Ontario Brain Institute’s (OBI) epilepsy research program (EpLink) is looking to better understand the questions Canadians have about epilepsy and seizures. These questions could be about causes or diagnosis, treatment, managing day-to-day life or managing co-existing conditions related to epilepsy. Co-existing conditions related to epilepsy include: Rett Syndrome Cerebral Palsy Down Syndrome Tuberous Sclerosis Depression, anxiety, or other mood disorders Neurodevelopmental disorders If you have epilepsy or experience seizures, or if you care for or work with someone who does, we want your help in setting the priorities for epilepsy research. Your answers to this survey will help...Read More
Everyone who has Epilepsy will have at least one seizure story that they can tell you changed their life in some way. Some people have had Epilepsy all their lives and yet their seizure story may have only occurred very recently, while other’s story happened decades ago. My life-changing seizure story may be a little different, as it was set in motion exactly six months before it actually occurred. When I was 40, I was working hard at my dream job; a job that I had worked my butt off to get with an incredible organization; Microsoft. I was...Read More
CANADIAN EPILEPSY ALLIANCE Statement on Ken Jeong’s Netflix Comedy Special Deirdre Floyd, President of Canadian Epilepsy Alliance: “I am somewhat mystified as to why forms of entertainment find it amusing to inaccurately portray first aid for seizures at all.” For Immediate Release – February 25, 2019 Once again the Canadian Epilepsy Alliance is responding to another example of inaccurate information in relation to first aid for seizures on Netflix’s Special called “Ken’s Jeong’s Comedy Special. This is so disappointing for the client base we serve in Canada that live with seizures disorders. As someone who has epilepsy,...Read More
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Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide.