About Kids Health – Epilepsy
Lots of information on seizures and epilepsy, plus a special section just for kids.
Best Medicines Coalition of Canada
The Best Medicines Coalition is a national alliance of patient organizations with a shared goal of equitable and consistent access for all Canadians to safe and effective medicines that improve patient outcomes. The BMC’s areas of interest include drug approval, assessment and reimbursement, as well as patient safety and supply issues. As an important aspect of its work, the BMC strives to ensure that Canadian patients have a voice and are meaningful participants in health policy development, specifically regarding pharmaceutical care.
dravetCanada is the Canadian Network for families, friends and caregivers of people with Dravet spectrum disorders.
Website for reporting drug shortages and discontinuations in Canada. The Food and Drug Regulations require drug sellers to report when they are not able to meet demand for a product or when they stop selling a product.
Matthew’s Friends Canada
Neurological Health Charities Canada
(NHCC) is a coalition of organizations that represent people with brain diseases, disorders, and injuries in Canada. NHCC provides leadership in evaluating and advancing new opportunities for collaboration specific to advocacy, education, and research to improve the quality of life for people affected by brain conditions.
Patients Like Me
This is an on line source for persons with epilepsy to use. A CLAE medical advisor recommended it.
Seizure Response Dogs Program
Since 1983, the lives of over 1200 men, women, and children from the age of 8 to 84, have been enriched by the services of specially trained Dog Guides from Lions Foundation of Canada. These Dog Guide “handlers” from as far east as St John’s, Newfoundland, and as far west as Victoria BC., have experienced the enrichment of their lives through newfound freedom and independence with the companionship and assistance of a devoted Dog Guide partner. Lions Foundation of Canada invites you to become an active supporter and participant in this hands-on humanitarian service.
The International Bureau for Epilepsy
The International Bureau for Epilepsy (IBE) improves the social condition and quality of life of people with epilepsy and those who care for them. We have a vision of the world where everywhere ignorance and fear about epilepsy are replaced by understanding and care. The IBE is made up of laypersons and professionals interested in the medical and non-medical aspects of epilepsy. We address social problems such as education, employment, insurance, driving license restrictions and public awareness
World Health Organization
Our goal is to build a better, healthier future for people all over the world. Working with offices in more than 150 countries, WHO staff works side by side with governments and other partners to ensure the highest attainable level of health for all people.
The World Health Organization and its partners recognize that epilepsy is a major public health concern. As an initiative established in 1997, WHO, the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE) are carrying out a global campaign – “Out of the Shadows” – to provide better information and raise awareness about epilepsy and strengthen public and private efforts to improve care and reduce the disorder’s impact.
Brain Injury Canada
Brain Injury Canada (The Brain Injury Association of Canada) was formed in 2002 after a groundswell of advocacy and national activity by local brain injury associations, survivors and caregivers across the country.
All agreed that the movement needed a national voice and national facilitator to connect and support the movement across Canada.
Canadian League Against Epilepsy
The Canadian League Against Epilepsy is an organization of medical professionals and basic scientists whose goal is to improve epilepsy care and awareness and encourage basic science and clinical research in epilepsy. Our members include physicians, basic scientists, nurses, neuropsychologists, neuroradiologists and other medical professionals, and we work closely with the lay organizations including Epilepsy Canada and the Alliance for Epilepsy.
Epilepsy Foundation of America
The Epilepsy Foundation of America, a national non-profit with more than 50 local organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The mission of the Epilepsy Foundation is: to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. The Foundation works to ensure that people with seizures have the opportunity to live their lives to their fullest potential.
MedicAlert – No Child Without Program
The Canadian MedicAlert® Foundation is a charitable organization which is the leading provider of emergency medical information services linked to customized medical bracelets and necklets. We are pleased to be able to offer MedicAlert memberships to students (from age 4 to their 14th birthday) through the No Child Without® program in select schools. The financial support of the Government of Canada and Lions Clubs allows students to receive the MedicAlert membership for FREE.
My Seizure Diary
My Seizure Diary is your self-management tool to help you record, track, and manage your seizures and epilepsy. The Diary lets you record your medical history, seizures, medications, side effects, moods, or other personal experiences
An easy way to keep a seizure calendar record . You can email your reports to your doctor in advance of any appointment.
The International League Against Epilepsy
The International League Against Epilepsy (ILAE) was founded in 1909 and is an organization of more than 100, national chapters.
Tuberous Sclerosis Canada
If you or someone close to you has been diagnosed with Tuberous Sclerosis Complex, TS Canada can help. We can provide you with up-to-date medical, genetic and neurological information. We can help you learn all that you need to know about Tuberous Sclerosis Complex.