Other Helpful Websites

Lots of information on seizures and epilepsy, plus a special section just for kids.

The Best Medicines Coalition is a national alliance of patient organizations with a shared goal of equitable and consistent access for all Canadians to safe and effective medicines that improve patient outcomes. The BMC’s areas of interest include drug approval, assessment and reimbursement, as well as patient safety and supply issues. As an important aspect of its work, the BMC strives to ensure that Canadian patients have a voice and are meaningful participants in health policy development, specifically regarding pharmaceutical care.

dravetCanada is the Canadian Network for families, friends and caregivers of people with Dravet spectrum disorders.

Website for reporting drug shortages and discontinuations in Canada. The Food and Drug Regulations require drug sellers to report when they are not able to meet demand for a product or when they stop selling a product.

(NHCC) is a coalition of organizations that represent people with brain diseases, disorders, and injuries in Canada. NHCC provides leadership in evaluating and advancing new opportunities for collaboration specific to advocacy, education, and research to improve the quality of life for people affected by brain conditions.

This is an on line source for persons with epilepsy to use. A CLAE medical advisor recommended it.

Since 1983, the lives of over 1200 men, women, and children from the age of 8 to 84, have been enriched by the services of specially trained Dog Guides from Lions Foundation of Canada. These Dog Guide “handlers” from as far east as St John’s, Newfoundland, and as far west as Victoria BC., have experienced the enrichment of their lives through newfound freedom and independence with the companionship and assistance of a devoted Dog Guide partner. Lions Foundation of Canada invites you to become an active supporter and participant in this hands-on humanitarian service.

The International Bureau for Epilepsy (IBE) improves the social condition and quality of life of people with epilepsy and those who care for them. We have a vision of the world where everywhere ignorance and fear about epilepsy are replaced by understanding and care. The IBE is made up of laypersons and professionals interested in the medical and non-medical aspects of epilepsy. We address social problems such as education, employment, insurance, driving license restrictions and public awareness

Our goal is to build a better, healthier future for people all over the world. Working with offices in more than 150 countries, WHO staff works side by side with governments and other partners to ensure the highest attainable level of health for all people.

The World Health Organization and its partners recognize that epilepsy is a major public health concern. As an initiative established in 1997, WHO, the International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE) are carrying out a global campaign – “Out of the Shadows” – to provide better information and raise awareness about epilepsy and strengthen public and private efforts to improve care and reduce the disorder’s impact.