The Ontario Brain Institute’s (OBI) epilepsy research program (EpLink) wants the input of Canadians living with or caring for people with epilepsy or seizures to set the priorities for epilepsy research in Canada.
If you have epilepsy or experience seizures, or if you care for or work with someone who does, we want your help in setting the priorities for epilepsy research by picking your top research priorities in a short survey.
Your rankings in this survey will help direct researchers and research funding organizations to the answer the questions that are most important to people living with epilepsy and/or seizures when planning future research projects.
This priority setting process follows the methods of the James Lind Alliance (UK) and is being funded by OBI. It is led by a Steering Committee that includes patient advocates, patient advocacy group representatives, clinicians, and healthcare professionals working with persons who have epilepsy and/or seizures.
This is an opportunity for you to lend your own personal/professional expertise and have your say in setting epilepsy research priorities.
Please complete this short questionnaire at: http://www.braininstitute.ca/epilepsy-psp (also available in French)
This survey is open from January 7, 2021 to March 7, 2021 – pick your priorities today!